Category: Uncategorized

Approximately 300,000 Canadians live with type 1 diabetes (T1D), an autoimmune disease that destroys the cells in the pancreas responsible for making insulin. The discovery of the insulin hormone over 100 years ago meant the first treatment for the disease, whereas previously a diagnosis meant certain death. But a century later, it remains the only treatment.  

On April 4, 2022 to publicly launch JDRF’s $100M Campaign to Accelerate, five brave Canadians will become Leaders in History, as part of JDRF’s Let’s Make History Again fundraising event.

For 100 hours, they will live atop of a flagpole in their respective cities. The event celebrates the 100th anniversary of the first successful injection of insulin, which took place in January 1922. The goal of this flagship fundraising event is for our Leaders – along with supporters across Canada – to raise a collective $15M and get us closer to our goal of a future without T1D.

Dexcom, a longtime supporter of JDRF, once again stepped up to be an event sponsor. The significance of the 100^th anniversary was particularly meaningful to the organization, which has been on the forefront of diabetes innovation with their continuous glucose monitoring (CGM) technology.  The Dexcom G6 CGM System is used by many of the event participants who have T1D.

The body is ever-changing and the factors that affect glucose levels are not necessarily predictable, including sleep, stress, hormones, physical activity, medication, other medical conditions. 

To maintain health and vitality and longevity, keeping glucose levels in range is essential – and this  requires careful monitoring to manage the delicate balance of insulin and those other factors, as they occur.  With other complementary technologies like insulin pumps and advancements with insulin, management of T1D can become easier on individuals and their families.    

How type 1 diabetes management has progressed

Evolution of insulin – People with T1D now have access to both long-acting and short-acting insulins, which can offer a little more flexibility in life.  Before these types of insulins, someone living with T1D would have to keep a repeatable routine with the same amount of insulin, activity, and same proportion of food/carbohydrates at the same time every day.

Glucose monitoring – Before finger prick tests and advanced glucose monitors, one would need to urinate on a stick and could only get a vague idea of whether their glucose was high or low. Early forms of blood glucose meters took a sample of blood, and then one would have to wait to get results – at first a few minutes and then eventually a few seconds. This could still prove difficult, especially for parents with young children. Constant finger pricks were painful, and it was challenging to get a sense of blood sugar trends or to have any idea of time in range.

Now, with glucose sensors – the user can develop a greater understanding of their own glucose trends and make more informed insulin dosing and treating decisions. This also has the benefit of helping to prevent a severe hypoglycemic event – and that is life-changing.  With remote monitoring now also possible (for parents, caregivers & others) through apps like the Dexcom Follow App, it has changed life for the entire family.

Insulin pumps – These pumps used to be approximately the size of a backpack and evolved over time along with insulin and the kind of precision engineering needed to be able to deliver small increments of doses that the individual could control. Now, they are about the size of a cell phone or even smaller, and allow the individual to fine-tune their insulin dosing more precisely for tighter control and easier corrections. With the added capability of being able to decrease or increase basal rates or extend boluses to release over time, the individual has the power to better approximate what a functioning pancreas might do.

Now, with insulin pumps that are integrated with continuous glucose monitoring sensor technology – insulin delivery can be automated to an extent. While active diabetes management is still necessary, the burden on the user is significantly less than it used to be.

In 2022, diabetes technology isn’t just better – quality of life is demonstrably improved with access to these devices. There is less wondering. One can check their glucose levels at a glance and know if it’s time for a snack or rest, or if something else is going on. And the burden on parents is significantly reduced. Before advanced glucose monitors, monitoring was reliant upon a child to track their glucose themselves with a blood glucose meter, recording results in a logbook. Now, with sensors and remote monitoring – parents can see what’s happening on their phone and intervene if necessary for a child’s safety. It improves peace of mind for the entire family. 

For people living with T1D, better disease management is now possible with less effort.  And with better control – one feels better and healthier – and this allows life to open. JDRF’s #AccessForAll campaign aims to make type 1 diabetes (T1D) technology affordable and accessible for everyone living with this disease, by working with the T1D community in their efforts to increase public and private coverage for insulin pumps and advanced glucose monitors (CGM and Flash GM).

Dexcom has always been a strong supporter of JDRF, and we serve the same community of individuals and families grappling with type 1 diabetes.  Many of the Dexcom staff themselves live with the condition, and until there’s a cure – the company aims to make things better with tools to empower people to take control of diabetes.   Research is increasingly promising, and an event like Let’s Make History Again can go a long way in getting attention for this important cause and for the T1D community.

JDRF thanks Dexcom for its significant contribution to our Let’s Make History Again event. It is with the support of important corporate partners that we can fund the most promising T1D research and get closer to our goal of a world one day free from type 1 diabetes. Until that time, advanced diabetes technology makes living with T1D day-to-day easier and better.

To learn more: www.canadacuresdiabetes.ca

Approximately 300,000 Canadians live with type 1 diabetes (T1D), an autoimmune disease that destroys the cells in the pancreas responsible for making insulin. The discovery of the insulin hormone over 100 years ago meant the first treatment for the disease, which previously a diagnosis meant certain death. But a century later, it remains the only treatment.

On April 4, 2022 to publicly launch JDRF’s $100M Campaign to Accelerate, five brave Canadians will become Leaders in History, as part of JDRF’s Let’s Make History Again fundraising event.

For 100 hours, they will live atop of a flagpole in their respective cities. The event celebrates the 100th anniversary of the first successful injection of insulin, which took place in January 1922. The goal of this flagship fundraising event is for our Leaders – along with supporters across Canada – to raise a collective $15M and get us closer to our goal of a future without T1D.

Cadillac Fairview (CF) immediately came forward to be the event’s premier partner. We spoke to Sal Iacono, Executive Vice President of Operations at CF about supporting this year’s fundraising event.

What made CF decide to support JDRF Canada and our Let’s Make History Again event?

CF has been a longtime supporter of JDRF for the past 20 years. This year we’re taking our relationship to new heights (literally) by having four CF properties across the country be the site of this exciting, milestone event, and help JDRF raise awareness for an important cause. Together, alongside our longtime partner, Oliver & Bonacini, we are excited to make history with JDRF.

How does your support of this event tie-in to your organization’s social responsibility goals?

At CF, our Purpose of Transforming Communities for a Vibrant Tomorrow is our north star. It’s the reason we exist, and shows up in how we support our people, partners, and communities. We have a strong legacy of supporting our communities, clients and partners and the causes that are important to them to inspire meaningful change. This is a true example of extending our support to our longtime partner, Oliver & Bonacini, by mobilizing impactful change across our national workforce.

Our Leaders in History will be living atop of flagpoles on many of your properties in support of type one diabetes research this April. How have you (or will you) engage your staff team in support of CF’s involvement in LMHA?

We’re proud to support the campaign by hosting the Flagpole 100 Challenge at four CF office towers across Canada. We’ve already started teasing the event internally to excite our teams and we will encourage local CF’ers and those who have supported JDRF for years to come out and show their support in person, if it’s safe to do so.

In addition to hosting the Flagpole 100 Challenge, CF has made a $100,000 donation to JDRF, furthering our ongoing support in the fight to find a cure for Type 1 Diabetes.

What would a cure for type 1 diabetes mean for Canada?

Now more than ever, health is top of mind. This would be an incredible accomplishment to transform the lives of hundreds of thousands of Canadians to live without complication and empower those affected to live life to the fullest. It would also continue to inspire individuals and communities that together anything can be achieved.

JDRF thanks CF for its significant contribution to our Let’s Make History Again event. It is with the support of important corporate partners like CF that we can find the most promising T1D research and get closer to our goal of finding a cure. To learn more: www.canadacuresdiabetes.ca

Tuesday, March 8, 2022 marks International Women’s Day (IWD) around the word. For this year, the theme is #BreakTheBias. The theme challenges us to imagine a gender equal world, that is free from bias, stereotypes, and discrimination. To envision a world that is diverse, equitable, and inclusive and where difference is valued and celebrated.

JDRF is pleased to rise to the challenge by breaking the bias of science being a primarily male-led field, as we celebrate our all-women research department. JDRF is the leading charitable funder of research into cures and disease modifying therapies for type 1 diabetes (T1D). Helping to shape this research are Drs. Anne Marie MacDonald and Sarah Linklater, our National Manager of Research Programs and Communications and Chief Scientific Officer respectively.

Anne Marie MacDonald has studied throughout the world and holds an undergraduate degree in physiology from McGill University and La Sorbonne (Montreal, Canada and Paris, France), a medical degree from the Jagiellonian University Collegium Medicum (Krakow, Poland) and a Master of Science degree in cancer rehabilitation from the University of Toronto.

Fluently bilingual in English and French, Dr. MacDonald uses her background to advocate for healthy active living and chronic disease self-management. Her career has focused on what she most believes in: supporting Canadians live an active and healthy life, whether through physical activity interventions, digital behavior change programs, or public health advocacy. She lives in Oakville, ON with her husband and young daughter, and when not working she is likely swimming, biking or running, or enjoying a strong coffee with a good book.

Dr. MacDonald understands personally what it means to live with T1D, and this drives her passion for supporting the most promising diabetes research.

“It’s an exciting time in diabetes research– a lot is happening at an accelerated pace, in our very own backyard. I love science and I know type 1 diabetes (I was diagnosed over thirty years ago) and so I couldn’t pass up the opportunity to work with JDRF Canada in an important research role (and on an all-female team!). Now is not the time to watch from the sidelines, and so I’m honored to be able to help the organization reach their goals,” says Dr. MacDonald.

Dr. Sarah Linklater is Chief Scientific Officer of JDRF Canada, where she leads the organization’s research strategy, funding programs and partnerships, and oversees clinical trials and research projects funded by the organization in Canada.

Before joining JDRF Canada in 2019, Sarah worked in scientific and medical publishing in the UK for 11 years, most recently as Editor-in-Chief of The Lancet Diabetes & Endocrinology, which she helped to launch in 2013. She obtained her PhD studying immune regulation and gene therapy approaches at the University of British Columbia in Vancouver, BC, and at the San Raffaele Telethon Institute for Gene Therapy in Milan, Italy.

Dr. Linklater is interested in all things type 1 diabetes, access to insulin around the world, and patient-oriented research. She lives with her husband and two children in Nanaimo, BC.

“JDRF Canada is proud to count so many women among our funded researchers, and especially among our trainees, who will go on to become the next generation of Canadian leaders in T1D research. I am grateful to all of the incredible women mentors I have benefitted throughout my career – now, I’m doing my best to pay it forward. It’s such a privilege to work with JDRF! Each day, I’m motivated by the advances we are driving, the passion of our researchers, and connecting with the T1D community,” says Dr. Linklater.

It’s an exciting time in T1D research, as many new potential disease modifying therapies and cure-based studies are in clinical trials, with the goal of bringing these to market and changing the reality for people living with diabetes. Much of this research may also have impact on other chronic autoimmune diseases, such as multiple sclerosis, Crohn’s disease, celiac disease and rheumatoid arthritis, and could lead to improved treatment options for type 2 diabetes.

Drs. MacDonald and Linklater are key decision-makers in determining the most promising research to fund, and JDRF is so grateful for their efforts in helping us get closer to our goal of a world free from T1D.

**** To read more about JDRF funded women researchers: https://jdrf.ca/celebrating-our-women-researchers-on-international-womens-day/

Last summer, Brain Canada and JDRF officially launched the JDRF Canada – Brain Canada Addressing Mental Health in Type 1 Diabetes Team Grants, a unique program that supports research on interventions that address mental health concerns in people with type 1 diabetes (T1D).

Living with a chronic illness like diabetes is hard. As a result of the burden of diabetes management, people with T1D are at an increased risk of developing mental health disorders such as depression, anxiety, suicidal ideation, eating disorders, and diabetes distress, a clinically validated term describing the powerlessness, stress, guilt, relentless worry, and denial that comes with living with diabetes and the burden of self-management. We know that people with T1D who develop mental health disorders, particularly depression and diabetes distress, have a lower quality of life, have worse glycemic control (i.e., higher HbA1c), measure blood glucose less often, suffer more frequent/severe hypoglycemia and diabetic ketoacidosis episodes, and are admitted to the hospital more frequently. Conversely, resilience, empowerment, a good support network, and wellness are linked with high quality of life and health outcomes in people with T1D.

Mental health is rarely a central aspect of day-to-day diabetes management and concerns often remain unidentified or unaddressed until they become serious and challenging to manage. Although mental health interventions are known to improve quality of life and outcomes for some people with diabetes, few are regularly implemented in standard care.

The JDRF Canada – Brain Canada Addressing Mental Health in Type 1 Diabetes Team Grants provide up to $250,000 over two years to fund the development and testing of three sustainable, scalable projects which aim to improve support for people in Canada who live with T1D and are affected by mental health disorders. These strategies could translate into better quality of life and diabetes-related health outcomes for people living with T1D.

Learn more about the three projects:

Dr. Tricia Tang

Using a virtual care platform to deliver peer-led mental health support to rural and remote communities in BC: A randomized wait-list controlled trial of the REACHOUT intervention

Dr. Tang and her team at the University of British Columbia will use a virtual care platform to deliver peer-led mental health support to rural and remote communities in BC, through an intervention called REACHOUT, created with support from a previous JDRF grant.

Given the shortage of mental health professionals who are trained in T1D, adults living in rural and remote settings experience the greatest challenge accessing the services they need. This gap in health care is why BC has identified “mental health care” and “rural and remote health care services” as two of the five provincial health care priorities. Dr. Tang’s team will seek to address three challenges of BC’s diabetes care: the availability, affordability, and accessibility of mental health support for adults with T1D living in settings with limited resources.

Peer support has been demonstrated to be a low-cost and viable approach to long-term self-management support. In addition, interventions that use technology (e.g., digital health platforms) have been found to improve mental and emotional health. As such, models that draw on both peer support and digital health strategies may prove promising in reducing health care disparities.

REACHOUT is a Mobile App developed in collaboration with adults with T1D, clinical psychologists, biomedical engineers, behavioural scientists, and rural health experts. REACHOUT uses digital health technology to “drive” mental health support to people living with T1D in the greatest need. If successful, this innovative approach that seeks to reach the “hard-to-reach” can be adapted for kids, teens, adolescents, and young adults with T1D in BC and across Canada.

Dr. Peter Selby

Technology-enabled comprehensive care for young adults with type 1 diabetes (T1D) experiencing diabetes distress

Dr. Selby and his team at the Center for Addiction and Mental Health in Toronto are bringing experts in mental health and T1D care together with those who have lived experience of T1D to co-develop a solution for diabetes distress that is accessible and acceptable to people with T1D, their caregivers, and health care practitioners. The program is geared towards younger adults between the ages of 18 and 29, a group disproportionately vulnerable to diabetes distress. The patient voice will be central throughout the project, from developing the proposal to developing the solution.

This project adapts proven approaches to managing diabetes distress to a virtual format (using video chat, telephone calls, and text messaging) supported and directed by mental health and T1D experts, thereby capitalizing on the digital literacy of this population and increasing accessibility to treatment. Participants will be invited to participate in the program which will comprise of 8 scheduled sessions, complemented by support from a care coach and/or peers.

The evaluation of the intervention will examine both the feasibility and acceptability of the program as well as its effectiveness in reducing diabetes distress. The impact on diabetes self-care, overall blood glucose levels, and episodes of low blood glucose will also be measured.

JDRF has committed to supporting and creating a holistic framework for mental health treatment and care for all people in Canada living with T1D. Their support for this project is another step in that direction.

Dr. Marie-Eve Robinson

Teaching Adolescents with type 1 diabetes Self-compassion (TADS) to reduce diabetes distress: A randomized controlled trial

Self-compassion is a practice that involves acting the same way towards yourself as you would with friends and loved ones, and that you are kind and understanding towards yourself. Since self-compassion is a skill that can be taught, the team believes that it could be a strategy to improve mental health issues in youth with T1D, like diabetes distress.

The aim of the study is to assess the effectiveness of a mindful self-compassion program on improving the diabetes distress experienced by youth aged 12-17 years with T1D. The mindful self-compassion program will consist of weekly virtual 1.5-hour sessions/workshops for 8 weeks, led by a trained facilitator. It will cover a variety of self-compassion practices, such as dealing with difficult emotions and developing a kind inner voice. The team anticipates that symptoms of anxiety, depression, disordered eating, and suicidal ideation will be lower in the mindful self-compassion group compared to the control group. This study has the potential to lower diabetes distress, the most common mental health problem experienced by youth with T1D, by increasing their self-compassion. Ultimately, the team plans to advocate for the inclusion of such programs in standard care for youth across Canada, thereby directly impacting their mental health and blood sugar control.

The JDRF Canada – Brain Canada Addressing Mental Health in Type 1 Diabetes Team Grants have been made possible by the Canada Brain Research Fund (CBRF), an innovative arrangement between the Government of Canada (through Health Canada) and Brain Canada, and JDRF Canada.

Christine MacGibbon: University Student, Former Dancer & Model

Diagnosed: 9 years old

Christine’s journey as a T1D warrior began 24 years ago. This was a pivotal moment for her and her family, as it had an immense emotional and physical toll.

In her personal and professional life, Christine has naturally evolved into an advocate, learning the power of knowledge as a tool to inform and ultimately transform the way we treat and manage diabetes. She believes that health is more than a physical state of being, but rather the sum of the emotional, mental, physical, spiritual, financial and social facets of one’s life.

As such, her goal to advocate with JDRF for each and every facet of diabetes in a holistic manner to enhance the quality of life and to be the light for other people living with T1D and their families.

A Letter to my younger self

Dear young Christine,

I know you’re scared and a bit confused. You’re 9 years old and the doctor said to your parents, “it’s positive” and you can feel the tears running down your face. You’ve just been diagnosed with Type 1 Diabetes at Sick Kids Hospital and thought you can never have sugar again and will die. You feel like you did something to cause this and are to blame. There are endless needles poking you and the doctors are scary. Little do you know, the girl down the hall in the same Diabetes Education Training Program will become your best friend. Going back to school will be hard. Other kids won’t understand and think you’re making excuses when you need to take snack breaks, check your blood sugar, and miss school. You’ll feel like an outsider and due to insulin, develop earlier. You’ll be bullied, called a “Hippo” in dance class for being bigger than other girls your age. Even though the insulin pump you wear makes you feel sick and different from everyone else, it will be one of your greatest superpowers. I know you want to deny your diagnosis and crash diet because of the pressure to fit in.

At age 15, withholding your insulin to lose weight will lead to diabulimia and eventually complications such as gastroparesis, osteoporosis, kidney stones and vision impairments. Getting coverage for insulin, blood sugar strips and allied health services will be challenging. You’ll face discrimination for being on disability from health systems and workplaces. Your mental health will decline because of the self-stigma of living with diabetes (diabetes burnout). It will be hard finding mental health support due to age requirements, location and waiting lists.

You’ll eventually admit yourself to a psychiatric ward where you’ll finally learn coping mechanisms and get the therapy you need. This will be the best decision of your life and you’ll feel like the superhero you always were, afterwards. Dating is hard because of the stigma, but you will meet someone who becomes your partner-in-crime and helps you realize how beautiful you truly are. Love is a powerful thing.

I want you to know that it’s okay. You are not your disease. You are still loved and capable. As much as you get bullied for your diabetes and feel isolated, you do not have to let the “Diabetes Monster” take over your life. With great power comes great responsibility and in diabetes, insulin, eating nutritious food, and exercise gives you your superpower(s). It takes time to find out how much insulin is right for you and listen to your body. There may be bad days, but never feel like this is your fault. Take it one day at a time. Let your insulin be part of your self-care and routine. This will help you become the superhero in your own life and realize your greatest powers and potential. Get help sooner than later. Diabetes impacts everyone, including your parents and siblings. I wish I knew there were online support groups for parents and children to find a “dia-buddy” and not feel alone. It’s hard for your parents not to be overbearing at times about your diabetes, but know it comes from a place of caring. Diabetes doesn’t have to mean missing out on your childhood and there are ways you can take more control over your diabetes management, so your parents don’t have to feel so anxious 24/7.

You’re not alone and there are many supports out there to help with the physical, mental, and financial stressors of diabetes. These include the Juvenile Diabetes Research Foundation (JDRF), Diabetes Canada, SickKids, The Centre for Addiction and Mental Health (CAMH), and Mental Health Helpline. Little do you know, among the challenges you have faced on your journey with diabetes, you will rise above and find your voice through being a diabetes advocate. You will realize how powerful you really are. You will enroll in a Bachelor of Health & Society with a minor in psychology at York University and campaign for diabetes mental health supports, accessibility and disease education and prevention.

This will be quite the adventure, little one. Just remember- insulin is your ultimate superpower. Your family will always love you, and do their best to support you. And you will never be alone with your sidekick partner, allied health supports and secret alliance of diabetes superheroes cheering each other on, as we fight one diabetes monster at a time.

Love,

Christine

Canada holds a special place in the story of insulin because scientists Banting and Best made the discovery at the University of Toronto, in 1921. Before the discovery, the lives of people with diabetes were often cut short and the disease often resulted in death.  Insulin’s discovery revolutionized the treatment of diabetes, increased life expectancy and changed lives.  

One hundred years after the discovery of insulin, Lilly is excited to announce The Leonard Prize, marking the 100^th anniversary of the discovery of insulin. To commemorate this milestone, Lilly launched Leonard – a campaign inspired by the life of Leonard Thompson, who became the first person with diabetes to be successfully treated with insulin in 1922, when he was just 14 years old.  

Since then, Canadian innovation have come a long way. For example, very recently, Canadian innovation drove the development of the world’s first nasal glucagon for the treatment of severe hypoglycemia. Lilly is proud to recognize the progress made in diabetes and in insulin development over the last century – as well as the advancements yet to come – while also honouring the bravery of Leonard Thompson and the millions of others whose lives were forever changed by insulin.   

The Leonard Prize is not just about celebrating past achievements — it’s about recognizing strides made in the development of insulin and other diabetes treatments and using them as inspiration to persevere.  

One winner will be chosen from each of five entry categories. A $20,000 (US) grant will be donated in the winner’s name to Life for a Child, an international diabetes initiative that supports children with diabetes in more than 43 countries. The entry categories include: 

• Teen/young adult: 18- to 25-year-old living with diabetes or with a strong personal connection to someone impacted by diabetes 
• Advocate/advocacy professional: Active advocate for people with diabetes, either through personal channels or with an established organization 
• Endocrinologist/primary care physician: Healthcare professional specializing in endocrinology or who acts as a primary care physician to people with diabetes 
• Diabetes educator/nurse: Diabetes educator and/or nurse specializing in the care of people with diabetes 

• Researcher: Research professional dedicated to research in the field of diabetes care (therapeutics, technology or otherwise) 

Applications can be submitted through an online form when the Leonard Prize site is made available in late June – www.lilly.ca/en-CA/stories/caring/insulin-centennial. Winners will be announced on November 14, 2021 – World Diabetes Day. 

This June, Canadians from coast to coast will be coming together to unite, raise funds and help accelerate the pace of type 1 diabetes (T1D) research as part of the 2021 Sun Life Walk to Cure Diabetes for JDRF. This year is a big one…we’re commemorating 100 years since the discovery of the life-changing drug known as insulin – discovered right here in Canada. Because of that, we’re challenging our participants to ‘think 100.’ Whether it’s 100KM of walking, running, bottle returns, sit ups…the possibilities are endless!

We wanted to feature some of our favourite 100 challenges that we’ve seen thus far. Read on to see what our amazing participants are doing to ‘think 100!’

100KM for T1D – Lindsay AND Cole

Dynamic-duo, Lindsay and her partner Cole – who has been walking for 21 years – , are full swing ahead with their challenge. This year, they thought they’d channel their competitive spirit and take it up a notch with their 100 challenge by running 100km by June 13^th!

“It’s been a fun challenge, and everyone has been so supportive of my progress. Cole is training for a Half Ironman this summer, so he’s been a great motivator and running partner!”

Team Gunderson will be breaking a sweat until event day, celebrating their huge ‘100’ accomplishment on event day.

“Team Gunderson will be at the Walk – rain or shine, every step of the way!”

100 Vaccines for 100 years – Danny and family

This will be Danny and his family’s 19^th year Walking with JDRF. This is also the 20^th year since his eldest daughter, Aviva, was diagnosed with T1D.

“My goal, to go along with the 100th anniversary theme, will be to administer 100 COVID vaccine doses at a mobile vaccination site each month, until we don’t have to do this anymore. I will do this in addition to caring for my patients in my family medicine office since vaccinating is a another way that I can help to protect their health and the well being of the community.”

Like all parents, there is nothing Danny and his wife Debbie won’t do to help find a cure for T1D.

“We are honouring the 100^th anniversary of the discovery of insulin.”

100 letters to the community – Tilly

In an effort to give back to the community, Tilly’s 100 challenge involves writing 100 letters to residents of long-term care homes.

“The idea came about from a family brainstorming discussion. Tilly’s brother suggested writing letters and she thought it was a great idea!”says Jo – Tilly’s mom.

Tilly hopes to bring smiles to the faces of those in long term care with her words, adding that especially during COVID, people are missing their loved ones, and don’t have the ability to have face-to-face conversations much anymore.

“It’s a way of giving back to the community, as they’ve always been so supportive to her lived experience with T1D, and her fundraising.”

A dollar for diabetes research (Dayden and Sylvia)

Dayden was diagnosed with T1D when he was in second grade. It was a life-changing event for him and his family, but their school community were quick to jump in and support the Aspins.

“My first conversation with another type 1 diabetic happened to be my son’s teacher. The school had been so supportive of him and his needs, so we’re challenging the students to each bring in a dollar for T1D research.”

Mom, Sylvia, says the school has been overwhelmingly supportive of his challenge.

Not only are we raising dollars as part of the challenge, but we’re removing stigma, raising awareness and promoting the importance of what JDRF does.”

We love to hear these stories from our dedicated T1D families, and are so grateful for the overwhelming participation in the 2021 Walk, and our 100 challenge!

Have you signed up for the Walk yet? Join Canadians from coast to coast and start your 100 challenge today. We hope to see you on June 13^th!

JDRF Canada is thrilled that federal budget 2021 includes new funding for type 1 diabetes research, as well as support for a national diabetes framework and improvements to the Disability Tax Credit (DTC).   

Of the $35 million investment to honour the centenary of the discovery of insulin,  JDRF is awaiting further details to better understand how this investment will support the renewal of the JDRF-CIHR Partnership to Defeat Diabetes, as JDRF had recommended a renewed research investment of $15M to be matched by JDRF and its donors for a total research impact of $30M.  

In fall 2020, our youth ambassadors took to the Hill virtually as part of our Kids for a Cure lobby day. Our delegates met with Members of Parliament and Senators to raise awareness about the daily challenges faced by those living with T1D and the need for more Canadian research in this field – specifically through the Partnership. 

The JDRF-CIHR Partnership to Defeat Diabetes is a landmark collaboration between the Government of Canada, through the Canadian Institutes of Health Research (CIHR), and JDRF Canada to support transformative type 1 diabetes (T1D) research. This unique partnership ensures that T1D remains a priority in Canadian health research and is based on a shared vision of improved care, treatment, outcomes and cures for those living with T1D.  

Continued investment in diabetes research and care will ensure those living with the disease can live healthier, safer and easier lives. It will also ensure that Canada continues as a world leader in T1D clinical trials and translational research.  

Federal budget 2021 acknowledges the importance of investing in diabetes care by including funding to establish a national framework for diabetes. The federal government appears poised to take on the work proposed by Liberal MP Sonia Sidhu in her Private Member’s Bill C-237, National Framework For Diabetes Act, which recently passed second reading in the House of Commons. Inspired by Diabetes 360 initiative first proposed by Diabetes Canada with support and input from JDRF Canada and other diabetes organizations, Diabetes 360 aims to develop meaningful targets designed to stem the rising tide of diabetes based on an innovative model that was used globally to tackle HIV/AIDS. 

The need for a comprehensive diabetes strategy is becoming increasingly important given the rising costs of complications associated with diabetes and the rapid rise in incidence over the past decade.   

The federal budget has also made changes to the eligibility criteria for the DTC, making key activities such as exercise, carbohydrate counting, medical appointments and time spent recovering from high or low blood sugars eligible to be counted against the 14 hours per week requirement. These changes are positive and should make it easier for more people with T1D to qualify.  

As we mark the centenary of the discovery of insulin this year, it’s fitting to continue investing in crucial partnerships and strategies that will ensure those living with diabetes can stay healthy until a cure is found. We are grateful for this commitment by the Government of Canada. 

Update: May 3, 2021:

Ontario: As of May 10, 2021 anyone over 16 with type 1 diabetes can book a vaccine throughout the province.

Alberta: Children aged 12 -15 with type 1 diabetes are no longer required to present a doctor’s note when booking a vaccine. Anyone over 16 with type 1 diabetes is also eligible for a vaccine.

Update: April 27, 2021:

We have received many questions about vaccination for children and adolescents with T1D. Below is the latest recommendation from the National Advisory Council on Immunization (NACI):

9. NACI recommends that COVID-19 vaccines should not be offered routinely to individuals who are not in the authorized age group. (Strong NACI Recommendation)

a. However, a complete vaccine series with a Pfizer-BioNTech may be offered to individuals 12-15 years of age who are at very high risk of severe outcomes of COVID-19 (e.g., due to a pre-existing medical condition known to be associated with increased risk of hospitalization or mortality) or are at increased risk of exposure (e.g., due to living in a congregate care facility), if a risk assessment deems that the benefits outweigh the potential risks for the individual, and if informed consent with the individual and the parent or guardian includes discussion about the insufficiency of evidence on the use of COVID-19 vaccines in this population. (Discretionary NACI Recommendation)

Alberta is currently offering vaccines to individuals in the age group with T1D. We will keep monitoring the rest of Canada and provide updates accordingly once the provincial recommendations on children and adolescents are revised.  

Original post:

April 26, 2021

Most of the country is now finding itself in the grips of the pandemic’s third wave, with many provinces back in lockdown. It has been a very long year, filled with fear and uncertainty – but hope is on the horizon. Vaccines have arrived and the rollout, while not without frustration, has been speeding up.

JDRF has been advocating for vaccination priority for people with type 1 diabetes (T1D) in most provinces and we’ve seen positive change.

While this is undoubtedly good news, we cannot let up now. Until enough people are fully vaccinated and the rate of new COVID-19 cases declines, we must continue to take every precaution to prevent exposure to both ourselves and those around us. We will not be safe until we are all safe.

We have learned that having T1D doesn’t increase risk of contracting the virus that causes COVID-19, but that adults with T1D are at increased risk of serious outcomes if they do develop the disease. Age and having other health concerns such as high blood pressure, underlying heart or lung conditions, obesity – and potentially also high HbA1c – seem to further increase risk of serious outcomes.

Below are updated recommendations from CoronavirusDiabetes.org on how to best protect yourself and others from contracting COVID-19. Because it is possible to spread COVID-19 even when a person is asymptomatic or pre-symptomatic, it is important to follow these guidelines at all times to protect ourselves and those around us.

If you have COVID-19 symptoms or believe you have been exposed to COVID-19, please contact your healthcare professional and get immediately tested.

T1D and COVID-19

Early detection of COVID-19 or other health issues can be lifesaving – if you get sick, get treated quickly. 

Measure temperature daily with a thermometer and check your heart rate with a watch. Track any changes.

Never stop taking insulin or other medications, even when you become sick. Discuss insulin or other medication dosage changes with a doctor.

Make sure you have a diabetes-specific sick day management plan ready, just in case. 

Know the warning signs of diabetic ketoacidosis (DKA) and seek immediate medical attention for symptoms including fruity smelling breath, vomiting, weight loss, dehydration, confusion, and hyperventilation.

Higher than average blood sugar levels in individuals with diabetes are a risk factor for more severe COVID-19 outcomes. Here are some tips to help you maintain more consistent blood glucose readings:

• Test blood sugar levels more often if you are under more stress than normal.
• Contact your doctor or health professionals, ideally over a virtual visit, if your blood glucose numbers are consistently out of range.
• Familiarize yourself with how to check for ketones. If you have adequate supplies, check for ketones regularly regardless of blood sugar levels.
• Make sure you have enough supplies (test strips, glucagon, pens etc.) on hand.
• Consider joining a T1D community, and take advantage of JDRF support.
• Being overweight/obese and smoking are also major risk factors for more severe COVID-19 outcomes – try and maintain a balanced diet along with daily activity.
• If you smoke or vape, it’s time to quit.
• Try and get good sleep. At least 7 hours if you’re an adult. And a minimum of 9 hours for children.

Reach out for help if you are overwhelmed and finding it difficult to manage your T1D along with the added stress of protecting yourself from COVID-19. Speak to your healthcare provider or support network about accessing additional resources and help.

For you and your loved ones:

• Basic precautions save lives
• Wash your hands every time you come home, or after handling/opening a delivery/package etc. Always maintain social distancing from non-household members, including while outdoors. Wear a cloth mask or face covering any time you’re within 2 meters/6 feet of individuals outside your home, especially in settings where social distancing is not possible. The mask should be ideally 3 layers and include a filter and be very well fitted to your face. Check to ensure that air isn’t escaping from the sides or top of the mask.
• Avoid prolonged exposure to aerosolized particles – e.g. indoor spaces with low ventilation, especially featuring loud conversation or singing. Avoid spending time indoors anywhere that is not your household without a well-fitted face covering.
• Cough or sneeze into your elbow or a tissue and avoid touching your face.
• Minimize trips outside of your home and try to avoid busy times or crowds when you do. 

While these are the same precautions we have been advised to take throughout the pandemic, it’s not yet the time to relax these restrictions. By adhering to these guidelines, you can better protect yourself and your loved ones.

May 4th, 2021

On April 15, 2021 the U.S. Food and Drug Administration (FDA) granted breakthrough therapy designation for vTv Therapeutics’ TTP399 as an adjunct therapy to insulin for type 1 diabetes (T1D). This designation is intended to expedite the development and review of drugs for serious and life-threatening conditions.

TTP399 is a liver-selective glucokinase (or GK) activator. GK regulates blood sugar levels in the body. When blood-sugar levels rise, activation of GK in the liver stimulates glucose utilization, lowering glucose levels in the blood.

In a JDRF-funded phase II clinical trial called Simplici-T1, TTP399 significantly improved HbA1c in people with T1D. Additionally, trial participants who received TTP399 had reduced insulin doses and lower incidences of hypoglycemia (low blood sugar), and no increase in diabetic ketoacidosis (DKA).

After several human studies in type 2 diabetes, JDRF began funding vTv Therapeutics in 2017 to test TTP399 in people with T1D. These positive topline results from the phase II clinical trial follow similarly positive results obtained in a previous smaller clinical study reported by JDRF in June, 2019.

The next step will be upcoming pivotal trials and a study to test the effects of TTP399 on diabetic ketoacidosis (DKA).

This is an exciting development in research focused on improving lives for people living with T1D today. JDRF Canada will keep on top of the latest research results for potential impact to Canadians with T1D.

April 19, 2021

JDRF was founded over 40 years by a group of devoted parents to provide a voice for the type 1 diabetes (T1D) community – and with the ultimate goal of finding a cure for T1D so that their children and all those who came after could know a world free from the disease.

So, the National Volunteer Week theme for 2021, The Value of One, The Power of Many feels very fitting, as it reflects on the awe-inspiring acts of kindness by millions of individuals AND the magic that happens when we work together towards a common purpose.

This past year was one like no other, as the COVID-19 pandemic changed our lives completely. But one thing shone that through the darkness was the continued caring and compassion that we received from our volunteers.

As our fundraising events moved virtual, and we all learned new ways of staying connected from the safety of our homes, a constant was the support of our dedicated group of volunteers.

The power of people working together can bring about amazing changes and progress. And this has certainly been true at JDRF. All the major developments in T1D research have been funded or supported in some way by JDRF. And none of this would have been possible without the support of our volunteers.

Among some of the highlights of the past year:

• We held our second research symposium, Bringing Breakthroughs to Life, with our partner Health Canada.
• We created our Let’s Talk T1D education and connection series, which provided our community with relevant information on topics such as devices and the opportunity to share personal experiences with each other.
• Sernova announced that patients in their ongoing clinical trial, funded in part by JDRF show persistent islet function and clinically meaningful improvement in glucose control.
• With volunteers by our side, we continued our advocacy efforts federally to push for a renewal of research funding and provincially to demand #AccessforAll – affordable and accessible diabetes technologies for all Canadians living with T1D.
• Ustekinumab, a potentially disease modifying drug for type 1 diabetes, is now being tested in clinical trials in Canada.
• And most recently we’ve been advocating across the provinces to ensure fair access to COVID-19 vaccines for people living with T1D.

The National Volunteer Week theme is a nod to the past, a reflection of the present, and a wink to the future. The Value of One, the Power of Many was also the theme for National Volunteer Week in 2001, The International Year of Volunteers.

It was chosen again as it beautifully captures both the individual and collective efforts that have been demonstrated over and over again during the pandemic, as well as setting the tone for the next 20 years as the value of one act and the power of many helps us thrive collectively.

And it feels appropriate too for JDRF, as we commemorate the 100^th anniversary of the discovery of the insulin hormone and look ahead to aggressively pursuing research that bring us closer to a cure. We know that this will only be achieved with the continued strength of our volunteers.

While we acknowledge our volunteers during this week, we our thankful and grateful for al they do each and every day.

We have over 500 volunteers across Canada, who have been with us for over 5 years.

While some choose to remain anonymous, we recognize them here: